The Research Participant Registry is a database of people who have volunteered to consider participation in research studies. This participation can be for themselves or their children. Its goal is to bring medical research advances quickly and more directly to those who can benefit from them.
Although the registry is a joint effort between the University of Pittsburgh and UPMC, neither you nor your child need be a patient in the UPMC health care system to sign up for the registry. When you sign yourself or your children up for the registry, you will begin to receive a periodic newsletter.
It describes research findings, details of the research process and includes a list of research studies that you may consider joining or allowing your child to join.
Participation is voluntary and confidential. Participants can take themselves or their children off from the registry at any time. There are over 200 research studies in the registry.
WHY SHOULD I JOIN?
To learn about ways to possibly improve your, or your child’s, health
To gain access to new medications, tests, and programs before they become widely available or that may not be available outside of research
To potentially help others
To further knowledge of health and effective medical care
You can view the full list of research studies at http://www.researchregistry.pitt.edu/.